Jenny Pearson

Stories

FDA approves first Alexander disease treatment, Ionis's Zanvastro

As of September 2026: Daughter Elise diagnosed with Alexander disease

Jenny Pearson's daughter Elise had her first seizure at 16 months. A scan a year later showed white splotches on her frontal lobe, and a genetic test confirmed Alexander disease, a rare progressive neurological disorder that had no treatment.

Updated Sep 13